Isla Tansley, the seven year old girl from Hinckley with a rare form of cancer, has died aged 7 years.
A campaign to remember her has inspired people all over the world to remember her by painting and hiding stones. People were encouraged to photograph, paint and re-hide the stones.
Decorated items (mostly stones) include the ‘#IslaStones’ hashtag so anyone finding a hidden article bearing the tag can find out more about the campaign online.
They can also post a picture on a dedicated Facebook group with over 50,000 members.
Cyclists from the Stoney Stanton Velo Club are reported to have placed three stones during their ride up Mont Ventoux in southern France.
The campaign is reported to have even reached the “….snowy climes of Antarctica, where researchers at the Australian Antarctic Division polished a piece of wood and painted it with a pair of penguins and a chick.”
Isla suffered from a diffuse intrinsic pontine glioma, also known as ‘DIPG’ is the second most common type of primary, high grade brain tumour in children. Following an operation last year, Isla lost feeling in her lower body.
Local Facebook Groups report ‘findings’ and ‘re-hides’
Member of the Facebook Group, ‘All Things Enderby’, Lucy Bloomfield posted “Leia’s stone found in Enderby – rehidden in The Pastures”
Andy Allbut-King, posting on the Facebook Group ‘The Pastures, Narborough’ wrote “Found a stone this morning on The Pastures in Narborough, then I was informed that this little angel had passed. Fly high with the angels my sweet one. Condolences to your mummy and daddy.”
More information on the Facebook Group #IslaStones
Hosted by Leicester Hospitals Charity and the Breast Care Centre at Leicester’s Hospitals, the walk is in aid of raising funds for the unit and raising awareness of the impact of breast cancer.
As the largest screening and symptomatic centre in East Midlands, the unit has made a commitment to make this year’s walk bigger than the last.
In 2017, over 1000 cases of breast cancer were diagnosed within Leicester’s Hospitals, which highlighted a new need for improvements to areas within the unit.
Amanda Gibby, General Manager for Breast Imaging at Leicester’s Hospitals, said: “Being diagnosed and treated for breast cancer will have a huge impact on any patient’s life.
“1 in 8 women nationally are diagnosed with breast cancer which is why we feel it is important to raise awareness and invite patients, friends and relatives to our Butterfly Walk.
“At our dedicated unit we are able to provide care throughout a patient’s journey. The unit is purpose build for our multidisciplinary teams who investigate, diagnose and treat all patients that come through our doors.
“We want to make sure everyone gets involved and raise as much as possible to help make our unit a calmer space for patients, as well as making the whole unit fit for purpose as needs and demands change.
“At the event there will be live bands, stalls, prizes and lots of things for the whole family to do, so we welcome everyone to join us for a great cause.
“Fancy dress is optional, but there will be lots of pinks, fairy wings, and tutus!”
“When I first arrived at the Breast Care Centre, I felt scared. I knew deep down there was something to worry about.
“The team explained everything to me. The nurses were so kind and they really made a difference.
“I saw the same people each time, walking the corridors and speaking to me like a person rather than a patient.
“The support from the Unit has been incredible; they are always at the end of the phone for not only me, but my family and friends.
“The care I have received has made my life worth living, it has given me life. If I hadn’t of had the care from the Unit, I wouldn’t be here. You have two paths to choose to walk down and I chose the path to survive.
“I will be walking with my husband, who has been my absolute rock, on June 9 to celebrate my life and raise the important awareness and money we need to keep on fighting breast cancer.”
Gez Salt was diagnosed with breast cancer in August 2013 and has worked for the NHS since 1991. She was treated by the Breast Care Unit in September 2013 and has since been recovering, returning back to her demanding job. Gez said: “The Unit is truly one of a kind. Every member of staff at Glenfield gave me the support and guidance I needed to navigate my way through an extremely worrying time in my life.
“From my initial appointment, right through to my treatment, I was always made aware of everything that was going to happen.
“Even after, I always felt like I could get in touch with someone to talk through my experiences.
“The Butterfly Walk this year is so important to me. I will be walking, armed with my tutu and wings, with everyone else to not only support the Unit, but also say a huge thank you, from the bottom of my heart for the amazing care I received.”
This year’s Butterfly Walk will be happening on Saturday June 9 at Leicester Racecourse.
Registration is from 10:00 with the main walk starting at 12:00.
A group of Brownies have become the latest people in the district to become dementia aware, gaining a new badge in the process!
The 2nd Countesthorpe Brownies, based at Thistly Meadow Primary School, have been taking on several challenges for their new badge.
From making flowers, creating memory games and hosting a friends and family tea party, the brownies have been learning about living well with dementia.
Their huge efforts have raised over £140 for the Alzheimer’s Society.
The badge came from local PCSO Julie Hodkinson, in memory of her friend Winnie.
The project has been funded by Blaby District Council, a partner of the Dementia Action Alliance, and gave a dementia friends talk at the badge-giving celebration event.
Councillor Iain Hewson, Portfolio Holder for Health improvement, Leisure and Regulatory Services, who attended the celebration event, said: “I’m so proud to see a group of young people in the district working so hard towards gaining their new badge, and learning so much about being dementia friendly.
“We hope the messages they have taken from this project will be passed onto their friends and families, as we continue our commitment to make as many people in the District of Blaby aware of dementia.”
Charlotte Jeickles, Leader of the 2nd Countesthorpe Brownies, said: “We have enjoyed the dementia awareness challenge and have learnt lots about living well with dementia. The brownies raised £142.50 for the Alzheimer’s Society and really enjoyed being visited by dementia friends.”
The project was first piloted by Hinckley GirlGuiding and the Hinckley & Bosworth Dementia Action Alliance, who put the booklet together and created the badges.
Anyone interested in their local GirlGuiding group taking part in the dementia aware challenge can contact 0116 272 7544 or email firstname.lastname@example.org.
[Photo: Blaby District Council]
A new initiative to improve the experience of people with dementia, who come into Leicester’s Hospitals, will be officially launched by Nicci Gerrard, founder of John’s Campaign and Julie Smith Chief Nurse, at Leicester’s Hospitals Champions Celebration Event on Wednesday, 13th September.
This inspiring initiative will be called ‘Stay with Me’, and will be rolled out over the next month into all wards and clinical areas.
The Champions Celebration Event is taking place during Older People’s Month 2017 to celebrate the hard work and support Dementia and Older People Champions provide for older people and people with dementia in and around Leicester’s Hospitals.
The principles of ‘Stay with Me’ were inspired by John’s Campaign, a national initiative founded by Nicci Gerrard in memory of Nicci’s father, Dr John Gerrard.
Justine Allen, from the Patient Experience Team explains:
“We’ve developed our initiative from the campaigns statement of purpose, ‘Stay with Me’. The ethos of ‘Stay with Me’ is to help create a welcoming environment on all hospital wards where there are no barriers for family who wish to stay beyond visiting times for patients with dementia.
“There is a wealth of evidence to suggest patients with dementia who are often frail, vulnerable adults have much more positive outcomes if they are with people they are most familiar with.
“The principles behind this campaign are very simple and similar to that of our existing Carers Charter; to allow family, carers and friends to help support vulnerable patients so it made sense to trial the campaign to see if it could enhance what we already do.”
Throughout June and July 2017, the initiative was piloted on wards 32, 33 and 36 at Leicester Royal Infirmary to see how it works in practice, and to identify possible barriers and difficulties.
During the pilot, staff welcomed carers, friends and family onto the wards beyond standard visiting hours and worked in partnership with families to help provide the best possible care for the patient.
Over 1,400 patients were admitted through the three wards, of which 14 patients had a diagnosis of dementia and had family who were supported by the scheme to stay beyond visiting times with the patient.
“Where patients may need some extra support, we have found this is often best placed to come from someone they know and love. Being in hospital can be an emotional and overwhelming experience, especially for patients with dementia.
“Having a familiar face by your side to help with getting dressed, eating or by just simply being there for company and reassurance, can make a huge difference to health and recovery.”
The results of the pilot were overwhelmingly positive and showed excellent engagement with staff from start to finish. Carer and family feedback also suggested they felt more supported and involved.
For further information about John’s Campaign, please visit www.johnscampaign.org.uk
Leicestershire Police have launched a campaign aimed at getting motorists to put safety first when they are overtaking cyclists.
The Safe Pass campaign uses a video to demonstrate safe and unsafe overtaking and emphasises the vulnerability of cyclists, whatever their age or ability.
It is endorsed by racing and Olympic gold medal cyclist Chris Boardman, MBE.
Narrated by 14 year old police cadet Keira Pibworth, who was also involved in the filming, the 90 second video has been timed to coincide with the run-up to school holidays, when more cyclists will take to the roads for leisure or because they are cycling to work during better weather.
Safe Pass is available via the force website and social media, leading up to a fortnight’s enforcement in early July, when officers wearing body cameras will covertly film motorists overtaking them as they cycle around various locations in Leicester, Leicestershire and Rutland.
Motorists who pass too close will be pulled over by other officers, to discuss what was wrong with their overtaking.
Inspector Paul Crewe said:
“Providing motorists with the information they need to make a safe pass is a crucial part of this campaign. Our aim is to make the roads safer for cyclists by educating motorists about the distances they need to leave when overtaking, as well as getting them to think about the risks involved before they start to pull out.
“It appears that most instances of dangerous overtaking are going unreported, which helps to explain why we don’t have an accurate picture of how big the problem is. However, nationally there is a growing awareness of the problem and we have a responsibility to inform and warn motorists of the dangers and potential penalties involved.”
Chris Boardman, who is also British Cycling policy advisor, said:
“It’s great to see Leicestershire Police launch this initiative. Close pass education projects such as this are becoming the norm rather than the exception within police forces across the country, and are extremely useful to explain that cyclists are not just obstacles in the road to get around but people – sons, daughters, mothers and fathers.
“Bad driving affects us all no matter how we choose to travel and this sends a message that people’s safety is being taken seriously.”
Chris Boardman explains how to safely overtake cyclists
The force is currently looking into the most effective way for cyclists to be able to submit film of dangerous overtaking and will publish further details over the next few weeks.
The recommended distance motorists should leave between their vehicle and the cyclist they are overtaking is 1.5 metres – about a car’s width or at least the space between the cyclist (should they fall into the road) and their nearside wheel.
Motorists are also advised to consider the road condition as it will help them to understand why cyclists may appear to ride further away from the curb than expected, for example, uneven grid-covers or dangerous rubbish in the curb.
Motorists who are proven to persistently overtake too closely, or who cause injury or death could face prosecution for dangerous driving.
The maximum penalties are:
- causing death by dangerous driving – custodial sentence of up to 14 years
- causing death by careless driving – custodial sentence of up to five years.